Genetic Testing

From prenatal to psychiatry, genetic testing holds the promise of personalized medicine. But our investigations have revealed an industry with oversold claims, misunderstood findings, and potential conflicts of interest.

FDA blinks on genetic testing, delays action

The FDA is delaying a major effort to bring thousands of genetic tests under its purview, despite concerns that unregulated tests are wrongly identifying conditions.

The rise of bio-rights: Patients demand control, get cash for DNA...

Public awareness of the value of genetic data and high drug costs are changing patients’ role in research. Before providing specimens, patients are increasingly looking for compensation or setting other conditions.

New mom says baby is “perfect” despite forecast from counselor

Genetic counselors working for testing labs have bioethicists worried they may repeat company marketing claims without verifying them.

A stunning discovery in genetics — 50,000 new species of tests

New genetic tests are hitting the market everyday. According to a new tally, the total number of tests on the U.S. market is 65,893 — more than quadruple the figure in a voluntary registry.

After angry moms fault counseling, genetics society cites its ethics code

The National Society of Genetic Counselors issued a statement affirming its ethics code, after a New England Center for Investigative Reporting story featured parents angered at counselors paid by genetic-testing companies.

Look at me: Why genetic test results don’t tell full story

One NECIR intern who has Turner syndrome worries that parents-to-be may make irreversible decisions based on genetic screenings without fully understanding the disorder.

When baby is due, genetic counselors seen downplaying false alarms

Parents are starting to question the independence of the fast-growing field of genetic counseling as more and more counselors are paid by the companies that make the tests.

VIDEO: How much should you know about genetic testing?

We teamed up with WGBH for a genetic testing discussion with a panel of experts, moderated by NECIR Senior Investigative Reporter Beth Daley.

Live chat: What should you know about psychiatric genetic testing?

Join NECIR's Senior Investigative Reporter Beth Daley, Huffington Post Healthy Living Editor Erin Schumaker, Dr. Joseph Goldberg of the Icahn School of Medicine at Mount Sinai, Dr. Daniel Carlat of Tufts University School of Medicine, and Dr. John Grohol of PsychCentral to learn more about this emerging industry in mental health care.

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