Public awareness of the value of genetic data and high drug costs are changing patients’ role in research. Before providing specimens, patients are increasingly looking for compensation or setting other conditions.
Genetic counselors working for testing labs have bioethicists worried they may repeat company marketing claims without verifying them.
New genetic tests are hitting the market everyday. According to a new tally, the total number of tests on the U.S. market is 65,893 — more than quadruple the figure in a voluntary registry.
The National Society of Genetic Counselors issued a statement affirming its ethics code, after a New England Center for Investigative Reporting story featured parents angered at counselors paid by genetic-testing companies.
One NECIR intern who has Turner syndrome worries that parents-to-be may make irreversible decisions based on genetic screenings without fully understanding the disorder.
Parents are starting to question the independence of the fast-growing field of genetic counseling as more and more counselors are paid by the companies that make the tests.
We teamed up with WGBH for a genetic testing discussion with a panel of experts, moderated by NECIR Senior Investigative Reporter Beth Daley.
Join NECIR's Senior Investigative Reporter Beth Daley, Huffington Post Healthy Living Editor Erin Schumaker, Dr. Joseph Goldberg of the Icahn School of Medicine at Mount Sinai, Dr. Daniel Carlat of Tufts University School of Medicine, and Dr. John Grohol of PsychCentral to learn more about this emerging industry in mental health care.